Matt and Nathan’s Story

Matt and Nathan’s Story

Meet Matt and Nathan Dees – Brothers diagnosed with Fragile X Syndrome in 1981 Submitted by their sister, Anna Kate (Dees) Brown I was almost 3 when my brother, Matthew, was born in 1978. My parents knew that he was exhibiting some developmental delays, but no doctor...
Alton’s Story

Alton’s Story

Alton Jones Lamm was born on November 3, 2019, a few weeks earlier than expected! My pregnancy was fairly easy and thankfully uncomplicated. The only concern was my family history of Hemophilia A-my father has mild Hemophilia A and my uncle has moderate Hemophilia A....
Tinsley’s Story

Tinsley’s Story

Tinsley Meister is the youngest of the three Meister kids that completed our family.  She is so loving and brings so much joy to our family despite all the challenges she has had to face through her 11 short years. During my pregnancy, the doctors had concerns with...
Sasha’s Story

Sasha’s Story

Meet Maria and her son, Sasha Boltenko.  When I found out that I was pregnant with my second child,I was so happy,and was hoping that it would be a boy. Sasha came to this world on August 31,2006. He was four weeks earlier than he was expected to arrive. We were...
Hart’s Story

Hart’s Story

Hart just turned five this summer, and we celebrated by having his first “big boy” birthday party.  We are thrilled to hear him talking more each day and trying new things like joining a t-ball team at the YMCA.  He has a great sense of humor and...
Hall’s Story

Hall’s Story

I had a very uneventful pregnancy until my 33 week appointment. I will never forget that day.  At my 33 week appointment, the sonographer stopped midway through and said, “I have to step out. I’ll be right back.” I remember looking at my husband and crying. I...