Matt and Nathan’s Story

Matt and Nathan’s Story

Meet Matt and Nathan Dees – Brothers diagnosed with Fragile X Syndrome in 1981 Submitted by their sister, Anna Kate (Dees) Brown I was almost 3 when my brother, Matthew, was born in 1978. My parents knew that he was exhibiting some developmental delays, but no doctor...
Alton’s Story

Alton’s Story

Alton Jones Lamm was born on November 3, 2019, a few weeks earlier than expected! My pregnancy was fairly easy and thankfully uncomplicated. The only concern was my family history of Hemophilia A-my father has mild Hemophilia A and my uncle has moderate Hemophilia A....
Tinsley’s Story

Tinsley’s Story

Tinsley Meister is the youngest of the three Meister kids that completed our family.  She is so loving and brings so much joy to our family despite all the challenges she has had to face through her 11 short years. During my pregnancy, the doctors had concerns with...
Sasha’s Story

Sasha’s Story

Meet Maria and her son, Sasha Boltenko.  When I found out that I was pregnant with my second child,I was so happy,and was hoping that it would be a boy. Sasha came to this world on August 31,2006. He was four weeks earlier than he was expected to arrive. We were...
Harleigh’s Story

Harleigh’s Story

This is the story of Harleigh Ann Catto and her ups of Down syndrome.  Her story starts with doom and gloom, as for the end of the story, it is still full of endless possibilities.  From the time Jason and I realized we were expecting a precious child we...
Brynley’s Story

Brynley’s Story

Brynley Farren Suzanne Woods aka “Queen B”, was born December 22 2016, a little over two months after her aunt/angel passed away. I had a normal pregnancy with no complications, but because of my age I was considered high risk. Her anatomy scan was fine, the genetic...