Levi’s Story

Levi’s Story

Saturday April 13th, 2018 was a normal day.  Levi was 18 months old at the time.  We played outside as a family and I remember it was the first time Levi tried to play hopscotch on our driveway.  That morning my husband, Pride, and I thought he looked a little bit...
Katie’s Story

Katie’s Story

Katherine Jane Schomisch (“Katie”) was born September 9, 2017. After experiencing some global developmental delays, our answer was found with an exome sequencing of Katie’s genes. Katie is the 220th person world-wide to be diagnosed with Schaaf-Yang Syndrome...
Charlsie’s Story

Charlsie’s Story

Charlsie Jane was born May 10, 2018 over 3 months early at just 1lb 11oz. I had been admitted to the hospital for 3 weeks due to Preeclampsia and HELLP syndrome. We knew she was going to come early and have a lengthy stay in the NICU. Most preemies typically go home...
Ella’s Story

Ella’s Story

On November 29, 2017, Ella was born, and the next day we learned she had a heart murmur.  We were told that her heart would most likely repair itself and we should not have any concerns as long as things continued on the same path.  We were relieved...
Quinn’s Story

Quinn’s Story

When Quinn was born, we nicknamed him “Mighty Quinn” because he fought for his life every day in the NICU. After we were able to take him home and get to know him better; however, we started calling him our “Sweet Quinn” because he is genuinely...