I had a very normal pregnancy and with it being our first child, we were so excited to become parents and start a new chapter of our life. On a Monday morning I went into work and noticed that I could not get my swelling to go down in my ankles. I reached out to our NP, he immediately checked my blood pressure and told me I needed to go to the hospital. I went that afternoon and never left. I was diagnosed with serve preeclampsia and eventually HEELP syndrome at 27 weeks. Beasley was born 4 days later on May 9th, 2019 weighing 1 pound and 6 ounces and 12 1/4 inches long.
We spent the next 110 days on the NICU rollercoaster. After coming home, Beasley’s hair began to fall out and I of course thought it was the normal newborn phase. It eventually grew back and fell out before falling out again in small patches. I knew then something was not right. We went to many pediatric dermatologist specialist and were finally diagnosed with Alopecia totalis. Alopecia is an autoimmune disease in which the immune system mistakenly attacks the hair follicles and currently there is no cure for Alopecia. Researchers and doctors still have very little information on why or what causes this disease. Although there is no connection with being born prematurely and Alopecia we are so thankful for our miracle baby! We kiss his little bald head countless times a day. We get lots of questions from strangers about his condition and this is one of the many reasons I feel we need to raise awareness and educate people on this physical difference. We are very thankful for KIND and appreciate everything you guys do to put spotlight on these differences!
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