Mile’s Story

Mile’s Story

Miles was born July 2020 in New York City at the height of the Covid pandemic. He was intubated in the delivery room because he wasn’t breathing and was unexpectedly taken to the NICU at the New York Presbyterian Hospital where he would spend the next 6 months....
Reynold’s Story

Reynold’s Story

Reynolds is an active 9 year old boy who keeps us on our toes. Over the last year, he has had some struggles but he has had even more victories. He is in a new school with the most amazing teachers. He LOVES going to school each day and seems so confident and...
Matt and Nathan’s Story

Matt and Nathan’s Story

Meet Matt and Nathan Dees – Brothers diagnosed with Fragile X Syndrome in 1981 Submitted by their sister, Anna Kate (Dees) Brown I was almost 3 when my brother, Matthew, was born in 1978. My parents knew that he was exhibiting some developmental delays, but no doctor...
Alton’s Story

Alton’s Story

Alton Jones Lamm was born on November 3, 2019, a few weeks earlier than expected! My pregnancy was fairly easy and thankfully uncomplicated. The only concern was my family history of Hemophilia A-my father has mild Hemophilia A and my uncle has moderate Hemophilia A....
Tinsley’s Story

Tinsley’s Story

Tinsley Meister is the youngest of the three Meister kids that completed our family.  She is so loving and brings so much joy to our family despite all the challenges she has had to face through her 11 short years. During my pregnancy, the doctors had concerns with...