Liam’s Story

Liam’s Story

Liam was born on January 27th, 2013, arriving 4 weeks early. Liam was born with hydrocephalus which means water on the brain. His specific diagnosis is L1CAM. It affects him physically and mentally. He underwent brain surgery and had a shunt placed at just 3 days old...
The Basile’s Story

The Basile’s Story

Meet the Basile Family Our family is quite different than many others on the outside but, like many families, we were built from love! Shawn and I (Sarah) got married in 2005 and we both deeply felt that we didn’t want to just “go through the motions,” in this one and...
Meet AnnaKate

Meet AnnaKate

Meet AnnaKate Weekes and her mom, Kelly Weekes AnnaKate is a joy to everyone she meets! She came into our lives through the blessing of adoption. At 3 months old she was diagnosed with Rubinstein-Taybi Syndrome (RTS).   RTS is a rare genetic disorder that affects many...
Jay’s Story

Jay’s Story

Meet the Cleveland Family and their son Jay.  When Jay was born, he was diagnosed with Pierre Robin Sequence (“PRS”).  PRS is a rare birth defect characterized by a recessed jaw, backward placement of the tongue and upper airway obstruction.  The...
Jack’s Story

Jack’s Story

My pregnancy with Jack was fairly uneventful, as was my short labor followed by a few minor complications with delivery. We were quite surprised when the doctor came in and asked us if we were familiar with Trisomy 21.  It only took a few days for testing to confirm...